I haven’t written much about Hyperemesis Gravidarum in a while. It’s hard for me to write about. It’s hard for me to remember. But I realized recently that even harder than remembering it is living through it, and right now there are women all over the world suffering from HG. So today I’m breaking my silence on HG and doing my part to spread the word about this disease.
For those who don’t know, Hyperemesis Gravidarum is a life threatening form of nausea and vomiting in pregnancy. Some folks might say that it’s like morning sickness, and I guess it is, if morning sickness lasted all day every day for months on end and caused you to vomit so much that it endangered your life. It’s awful. It’s ugly and brutal, and it kills mothers and babies. That’s why it’s important that we talk about it.
I’m a two-time survivor of HG, and you can read about my experience under the Hyperemesis Gravidarum category.
If you’re suffering from HG, you can check out my hyperemesis gravidarum protocol here. It might be useful to print this off to share with your doctor if you’re sick or to make notes for yourself on if you’re planning another pregnancy.
Recently, there’s been some buzz in the news about Zofran and the possibility that it has been linked to birth defects. One of the things I’m happiest to share is this study from UCLA that found no evidence that Zofran causes birth defects. This is huge! Zofran has saved the lives of many women with HG, and maintaining access to life-saving treatments is so important. I’ll share a post later with more about my experience with Zofran, but I thought it was important enough to get this life-saving news out as soon as possible. I didn’t want to wait to tell you all.
HG is terrible, but there are ways you can help.
You can participate in research studies. If you or a relative has had HG, you can check here to see if you qualify for the research UCLA is conducting to find out if there are genetic links with HG sufferers.
More than anything, you can talk about HG. So many mothers suffer in silence. I spent 12 weeks of my first pregnancy covering up how sick I was because I felt guilty for being a wimp about morning sickness. I’d never heard of HG, and learning that I had it and that it was real probably saved my life. Even many doctors don’t recognize HG as being real, so talking about this and spreading the word can save lives.
If you know someone who has HG, reach out to her. This disease is so isolating. Understand that she may not be up to hanging out, but knowing that you’re thinking of her can really help. So can helping with more mundane things like dishes, laundry, babysitting kids so she can rest, and meals for the family.
She may need help getting to the doctor’s office or the pharmacy. Let her know that resources like HelpHer.org are out there. Keep an eye on her and if it seems like the treatment isn’t working, help advocate for her with medical professionals. I remember going into my 2nd round of HG prepared and ready to fight, but when I was in the thick of it, I just didn’t have it in me to correct the random doctors in the hospital who told me there was nothing wrong with me. Even the fiercest woman may need help standing up for herself when she is so desperately ill.
If you have Hyperemesis Gravidarum know that you are not alone.
I see you. I know your struggle. I remember. I stand with you. Please reach out to friends, family, HelpHer, facebook groups, and wherever you can find support. You are not suffering from this because you are weak. You are so, so strong even though it feels like you’re breaking apart at the seams. More than anything, you are not alone.